The Tube Is Gone
Our beautiful, firstborn granddaughter, Skylar, came into this world under stress. Six months after her birth the slowly dawning diagnosis of Kabuki Syndrome was confirmed for us. In the first month of her life a g-tube was inserted into her stomach because she was not able to suck nourishment…nor was she able to effectively get said nourisment down the proper pipe in order to feed. If I could show you a picture of our very, sick little baby then and put it next to a picture of our energetic six-year old little girl now, you would scarcely believe it.
On Thursday, November 18th, the tube that sustained her all these years was removed. The doctor instructed our daughter to simply take the tube out and leave it out. It was a great moment for our family. It represents the wonderful kindness of our Father God Who has not only allowed us to keep our little girl…but has granted her the grace to blossom under the loving care of her parents, teachers, therapists and doctors.
On that glad day, Sky’s parents took her and little brother, Trapper, to Applebee’s for lunch. Sky sometimes speaks of herself in the third person. Later that great day I was talking to her on the phone. Here’s some of what I heard Sky say…”She ate at Applebees. She had ice cream.” Now those are two really good things to do on the day your feeding tube is no longer needed.
I know that God, for His own gracious, if unclear to us, reasons, doesn’t always answer yes to us. But this day, He did! This day we praise Him with hearts full of joy for that answer and for the care He has always given our little girl. As we think about the future for Skylar, questions come to our hearts. The kind of questions that bother the hearts of parents and grandparents. But today we praise God for giving us this victory. And we are encouraged that His grace will find a way for Skylar and for us all in all the future as He gives it.
So, this Thanksgiving, among all the things for which I am deeply grateful, I praise Father God for the now tubeless life of our precious Skylar, heaven’s gift to us that keeps on giving.
And I was wondering… “What’s on your radar presently that’s moving you to express praise and thanks to God?”
With regard to Thanksgiving Day…I believe it was Charles Dickens who said the Americans have it wrong in appointing one day for Thanksgiving. He said we ought to take that one day and use it for whining and griping. Then use all the other 364 for Thanksgiving! Maybe he was on to something there.
God bless you and yours…now and always.